asideview

Home » Health » Health » Person Centred Care and coproduction – the ‘get real’ factor.

Person Centred Care and coproduction – the ‘get real’ factor.

expo2015This year I’m attending EXPO 2015 as a member of the People’s Panel which is a group of people who are patients or carers and who have lived experience in learning to deal with their own Long Term Conditions or as a carer, and who have also become expert in navigating the sometimes complex world of health and social care.

The fact that the planning for EXPO has included patients and carers is demonstrating the drive and commitment of NHS England and the Five Year Forward View to develop “..a more engaged relationship with patients, carers and citizens so that we can promote wellbeing and prevent ill-health”. https://www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-web.pdf

This new relationship will be exemplified by members of the People’s Panel to show how working together, or coproduction, can happen in practice between patients, carers, and organisations and hopefully usefully bring a ‘reality check’ to the many conversations and debates that will take place over two days.

Working together or true coproduction is not as easy as it sounds in reality. Often I have found myself being used for a consultation or engagement event where I know that nothing I say will change anything and all that is really required by the organisation is an endorsement so that they can ‘tick’ the patient/carer/public engagement box.

That kind of exercise is so short-sighted as no one really gets anything positive from it- the organisation doesn’t get the insight they need to be really effective and for me, as a patient expert, all I’m left with if a feeling of frustration, having had my time and limited energy wasted.

I’m pleased to say my experience with EXPO15 and the Coalition for Collaborative Care, http://coalitionforcollaborativecare.org.uk

where I am a coproduction member, has been positively different. Specifically in the planning of the event:

  • Patient/carer views were listened to seriously, discussed and acted upon;
  • Proactive advice and suggestions were welcomed;
  • Patient/carers were valued as equal members of the planning team.

Equally I have respect for the professionals who have key roles in planning such a high profile, national event with tight deadlines, a zero budget and small team. This is indeed evidence of developing better ways of true partnership and really working together from design to implementation.

It has been said that this year’s EXPO 2015 “..will be challenging, and will deal in reality not theory”. As a person who has Long Term Conditions I deal with the reality of that every day which includes chronic pain, limitations in mobility and lack of stamina on the negative side but also includes positive insight into personal resilience, into health and social care organisations and how simple changes could make big difference to people’s lives.

So I’m really looking forward to taking part in the two days in Manchester, my home city, on 2 and 3 September and particularly working in partnership with other members of the People’s Panel, the Coalition for Collaborative Care and the people I meet.

I’m looking forward to listening, learning and hopefully influencing too so that I can feel I have made a positive difference in the drive to ensure that true partnership working becomes embedded across health and social care so that person centred care can become a reality for everyone.

In other words the ‘get real’ factor – hope it helps.

Advertisements

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

The Sensitive Gut

Understanding IBS

British Politics and Policy at LSE

Experts analyse and debate recent developments across UK government, politics and policy

whatworkswellbeing.wordpress.com/

Independent high quality evidence on what organisations - Governments, Charities, Businesses - can do to improve wellbeing

MyBlue.Blog

Walking through that door makes the blue a little lighter. She holds space as I gently spill. We sit, we talk - we water, dig and bury. Nurturing a shoot. Aiding it in light - to find its path through thorns - Malan Wilkinson

Lighthouse

The Revolution is Disability Accessible.

oliveoconnor.com

Award Winning Social Innovator - Educator, Mentor & Facilitator - Health Care Advocate - International Speaker

Becky Malby

Learning Journeys

See Me as a Person

Improving the Patient Experience

Local Democracy and Health

Taking control of our own health and well being

George Blogs

@georgejulian

drjongriffiths

Blogging about healthcare and the NHS

suzette woodward

Rethinking Patient Safety

GM PSTRC

Improving Patient Safety Through Research

Patient Leader

My continuing journey as a Patient Leader

george rook

living with dementia as well as I can

cantankerousman

An Empty Vessel Makes The Most Noise

racheld1607

Poetry and PhD

A Daughters Story

Caring for Dad

%d bloggers like this: